Publications

Psychosocial Aspects

SENSORS & QUALITY OF LIFE IN T1D

Per Winterdijk, Henk-Jan Aanstoot, Giesje Nefs

The impact of real-time sensor technology on quality of life for adults with type 1 diabetes: A Dutch national survey. Diab Res Clin Pract. 203;September 2023;110886

Real-time continuous glucose monitoring (rt-CGM) technology has much improved over the last few years, becoming more accurate and easier to use. Higher % of Time In glucose Range (TIR) and lower % of Time Below glucose Range (TBR) can be seen when rt-CGM is compared with intermittent scanning continuous glucose monitoring (is-CGM, a.k.a. Flash Glucose Monitoring) or when rt-CGM is combined with open-loop pump therapy (Sensor-Assisted Pump [SAP] therapy) or multiple daily injections (MDI). Integrating rt-CGM in more recent Automated Insulin Delivery (AID) systems (i.e. [advanced] Hybrid Closed-Loop [aHCL] systems) leads to even more optimal TIR and TBR values. This sensor technology has also been shown to benefit diabetes-related quality of life (QoL), although most existing studies have been either qualitative or quantitative and have not assessed if rt-CGM was used in the SAP or in the AID setting. In the Netherlands rt-CGM reimbursement is limited to certain categories of people with type 1 diabetes (PWDs), which has sparked a societal debate. This study, co-authored by Per Winterdijk, Henk-Jan Aanstoot and Giesje Nefs of Diabeter, aimed to get a detailed overview (quantitative and qualitative) of both positive and negative experiences of Dutch PWDs who are using rt-CGM technology and its impact on QoL.

 

In this cross-sectional, observational study ~8,000−10,000 eligible Dutch PWDs aged ≥18 years currently using rt-CGM were contacted via care and advocacy organizations: Bas van de Goor Foundation, Diabeter, Diabetes+, Diabetesvereniging Nederland, Dutch Diabetes Research Foundation, Sensorvergoeding.nl, Stichting DON, Stichting ééndiabetes, and Stichting JDRF Nederland. They received a link to the information folder, consent form and anonymous survey.

Key findings:

  • Of 1,163 PWDs who consented, 893 were included, of whom 777 completed the full survey
  • The age group 31−40 years was best represented (26%), 75% were female and the HbA1c 6.5−6.9% (lowest) group was best represented
  • The biggest advantages of rt-CGM use were feelings of being:
    • less restricted by diabetes
    • more satisfied with diabetes management
  • The most obvious disadvantages were constantly looking at glucose levels, sleep disruptions, excessive thinking about diabetes, RT-CGM not being as accurate as desired, skin irritations or bruises
  • Users of AID systems reported a significantly larger improvement in overall QoL, fatigue and diabetes-specific distress than those using SAP or Open Loop
  • Participants were very satisfied with being able to use rt-CGM, experiencing:
    • The feeling of being more like a person without diabetes due to decreased burden/ workload
    • Improved perceived personal control over diabetes
    • Increased sense of safety
    • Decreased discomfort due to lower frequency of finger-stick glucose measuring
  • Many participants were dreading the moment they would have to change back to the ‘old ways’

 

Concluding, the authors state

"In conclusion, RT-CGM use (particularly in AID) is related to improvements across a broad range of QoL domains. In making the benefit-burden trade-off, most people tend to a positive evaluation. Combined with data from trials and real-life studies, our findings encourage policy makers to revisit the discussion on broader RT-CGM access. With further technological advancements underway, increased support for people to maximize RT-CGM benefits and minimize burdens is warranted " -

Please click here for the full text pdf.

< Back


© 2023 Diabeter | Terms of Use | Privacy Statement