Finding out the extent to which diabetes is affecting a patient’s quality of life (QoL) is an important step towards optimizing care. Diabeter staff took a key role in developing the Monitoring Individual Needs in Diabetes (MIND) Youth Questionnaire (MY-Q) – a multi-dimensional self-report health-related QoL instrument, and the first to be especially designed for use in pediatric diabetes care.
This report describes the development, evaluation, and validation of the 36-item MY-Q, which consist of seven subscales: social impact, diabetes control perceptions, responsibility, worries, treatment satisfaction, and body image and eating behavior. The questionnaire also evaluates general health-related QoL and emotional well-being.
The evaluation of My-Q was based on interviews with 22 teenagers, plus an additional 84 teenagers with T1DM who also completed the Pediatric Quality of Life Inventory (PedsQL) modules (general and diabetes-related).
Concluding, the developers of MY-Q said the new questionnaire “has acceptable measurement properties and seems suitable for implementation in routine care of teenagers with diabetes”.
For PubMed abstract click here.